Sickle Cell: In The News
We make it a point to spread awareness and keep up to date with SCD news in the community. An RSS feed for this blog is posted below. To view archived posts, click here.
On July 20, 2018, The K I S Foundation, Inc., The County of Los Angeles and Supervisor Mark Ridley-Thomas, in partnership with the Sickle Cell Disease Foundation of California came together for the Inaugural "Crisis Care Package" Backpack Giveaway at Camp Crescent Moon.
Sickle Cell Anemia was first described in 1910 and was quickly labeled a “black” disease. At a time when many people were preoccupied with an imagined racial hierarchy, with whites on top, the disease was cited as evidence that people of African descent were inferior. But what of white people who presented with sickle cell anemia?
By the time the rapper Prodigy sang what would become the most famous lyric of his decades-long musical career — “I’m only 19, but my mind is old” — he had already suffered through greater physical pain than most people will experience in a lifetime.
The U.S. Food and Drug Administration has approved the first drug in nearly 20 years for sickle cell, an inherited disease in which abnormally shaped red blood cells can't properly carry oxygen throughout the body, which can cause severe pain and organ damage.
Acting on a motion by its chairman, Mark Ridley-Thomas, the Board of Supervisors awarded a scroll to pioneering hematologist Dr. Yutaka Niihara, whose research recently led to a breakthrough in the treatment of a painful blood condition that primarily affects African American communities.