On one occasion while visiting Childrens Hospital L.A., one of the gallant doctors there shared with me the story of how he had administered “enough morphine to kill an adult” to a child having a SCD crisis, and it didn’t even make a dent in the pain this child was experiencing. Hearing these life stories of SCD patients fueled my desire to help even more. My commitment continues.
Although there is a procedure that eliminates/cures this disease – the bone marrow transplant – the procedure is out of financial reach for many families and is not always successful. Awareness and education are paramount.
This year the K.I.S. Foundation, Inc., is focusing on young adults in transition from pediatric care to adult care. Young adult SCD patients are often denied medical care in emergency rooms due to a lack of knowledge of SCD symptoms and appropriate procedures.
Sickle Cell Disease research is not given the same priority as similar blood disorders. It is up to us to change that!! The need for awareness, financial research resources, and an affordable, universal cure continues.
Please …. Help Me To Help Others !!
Let’s Break the Cycle of SCD
Peace and Love,