Join Us for the “Celebrity Bowling Challenge”

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The Celebrity Bowling Challenge stresses the need to educate the public about Sickle Cell Disease, and to stimulate continued dialogue about how it is spread, its debilitating effects, ways of prevention bone marrow transplant surgery, and the need to get tested now!

This fun-filled event will bring together members of the entertainment industry, businesses, families and Sickle Cell patients. We will have 32 teams headed by Celebrity Captains in a two game Bowling Tournament, followed by a Celebrity Challenge Lightning Round. Players will compete for bragging rights, and winners of the tournament will be honored in a light-hearted awards ceremony. Enjoy a fabulous auction, games, surprise entertainment, great food, drink, and event goodies!

For more information on how you can purchase tickets or sponsorship packages, please visit our Events page.

 

Back 2 School Health & Resource Fair

We are proud to announce that we have partnered with The Special Needs Network for their “10th Annual Back 2 School Health & Resource Fair” on Sunday, August 30, 2015 from 2-6 PM. Families with Sickle Cell patients will receive Backpacks with School Supplies and other giveaways. Join us for this fun filled family day!!

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André Dawson Honored by National Congress of Black Women

Congratulations to K.I.S. Foundation Board Member, André Dawson for being honored by the Los Angeles Chapter of the National Congress of Black Women for his outstanding philanthropic work in the community.

KIS Foundation Founder, KiKi Shepard and KIS Foundation Board Member André Dawson

KIS Foundation Founder, KiKi Shepard and KIS Foundation Board Member André Dawson

White House’s Response to Petition on Sickle Cell Disease

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As you know, Sickle Cell Disease (SCD) is a common inherited blood disorder that affects an estimated 90,000 to 100,000 Americans, and can lead to lifelong disabilities and reduced average life expectancy. The disease disproportionately affects people of color, and occurs among roughly one out of every 500 African American births and one out of every 36,000 Hispanic American births.

SCD is a major public health concern that warrants ongoing federal support, and is a priority for President Obama and his Administration.

That’s why the Department of Health and Human Services (HHS) is actively engaged in a number of efforts to help do the following:

  • Better identify individuals with SCD
  • Improve access to care
  • Gather data about best practices in order to improve treatment therapies
  • Raise awareness of SCD
  • Promote health education about SCD
  • Search for a cure through ongoing research efforts

HHS is developing Healthy People 2020 objectives to support SCD-related health promotion and disease intervention initiatives across the federal government. To evaluate progress in meeting these objectives and better inform future federally funded research and prevention efforts, the Department is developing a pilot national surveillance system to collect data to better understand characteristics of those affected by SCD, what complications these individuals are experiencing, and what gaps exist in meeting their health needs.

Through the Health Resources and Services Administration’s SCD Treatment and Newborn Screening Programs, HHS is also expanding access to care for individuals with SCD by increasing the number of providers treating patients with SCD who are knowledgeable about current treatment options and identifying those with the disease sooner so that they can begin receiving recommended treatments. HHS is also increasing patient education and outreach efforts for individuals with SCD or who are carriers of the sickle cell gene mutation to prevent infections and ensure needed medical care is received.

The Centers for Disease Control and Prevention (CDC) has additional materials to raise awareness of SCD among teachers, non-medical professionals, and other members of the general public.

The White House is also investing in critical research on SCD at institutions across the country. The National Institutes of Health (NIH) funds research focused on increasing the effective use of known SCD therapies, discovering new treatment options, ameliorating complications, and ultimately finding a cure. In September, NIH released the first systematic and evidence-based report to assist clinicians in delivering care to people living with SCD.

Finally, the CDC has an agency-wide working group to explore opportunities to address unmet needs in SCD research, surveillance, and health education. Through the efforts of this working group and consultation across agencies within HHS, the Department will consider other ways in which it can strengthen its current activities regarding SCD.

We still have much more work to do, but we will continue to make progress — not just to help the tens of thousands of Americans currently living with sickle cell disease, but to ensure that one day, we have a generation where the disease is only something that’s read about in history books.

Thank you for your adding your name to the White House Petition for the Sickle Cell Treatment Reauthorization Act, and for your involvement in the We the People platform.

~We the People, The White House

The 160th Annual Communication Grand Session

KISF w MasonsRaising Awareness of Sickle Cell Disease and registering Bone Marrow Donors with K.I.S. Foundation Board member Dondré T. Whitfield; Bone Marrow Ambassador, Nita Thompson; Luther Craddock & Sherman Kelley of the Prince Hall Masons of the Joseph A. Menkins Lodge No. 103; and KiKi Shepard, Executive Director of the K.I.S. Foundation at the 160th Annual Communication Grand Session, July 13-14,2015.

This was a magnificent and historic event! Special thanks to the Grand Master, the Honorable Lovell Morgan for the invitation to attend, register donors, and for the opportunity to address all of your members about Sickle Cell Disease.

Save the Date for KiKi Shepard’s Celebrity Bowling Challenge!

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Celebrate World Sickle Cell Day

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Dondré T. Whitfield hosts “A Charitable Therapeutic Thursday”

Wells Fargo presents a “Holiday Evening of Comedy”

Call to Action: The White House Petition is Here for the Sickle Cell Treatment Reauthorization Act ! Sign Now!

H. R. 5124 – “Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2014”

The SCTRA is a bipartisan legislation introduced to the House of Representatives to renew the nation’s programs for research, surveillance, prevention, and treatment of SCD for another 5 years. Bill H.R. 5124 will expand the national newborn screening program, develop a comprehensive adult transition program, continue public surveillance, expand research efforts and establish up to 25 Sickle Cell Treatment Centers throughout the US all in an effort to support the creation of a sustainable comprehensive model of care for individuals affected by SCD.

This is a huge step for maintained, comprehensive care, but this Bill needs your support. We have 30 Days to sign the White House Petition and make a difference in the lives of patients and families living with Sickle Cell Disease. Help us to reach our goal of 100,000 Signatures by October 22, 2014 to secure the introduction of this Bill in the Senate and get H.R. 5124 passed.

SIGN the Electronic Petition Online (takes 10 seconds of your time)
https://petitions.whitehouse.gov/petition/declare-sickle-cell-disease-national-health-priority-and-support-legislation-expand-and-establish/jFgQrMJ7