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K.I.S Interview

Athlete Deaths Spur Testing

Thousands of families carry the gene that causes sickle cell disease and don't know it — even though almost every newborn today is tested for what's called "sickle cell trait," and this summer more athletes are getting tested.

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N.I.H Stops Drug Trial

The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension in sickle cell patients after preliminary results showed that the drug was actually increasing sickle crises rather than reducing them.

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The K.I.S Foundation, Inc.

 

 

MISSION STATEMENT


To inform and educate the public and raise awareness about Sickle Cell Disease through community outreach programs and educational scholarships. We will also financially help support the efforts of research institutions to find a universal cure.


About Sickle Cell Disease


Discovered in the United States over 100 years ago, sickle cell disease (SCD) statistics are staggering.  In the US, one in 2,500 newborn babies has the disease and approximately 54,000 babies are born each year with sickle cell trait. There are approximately 80,000 Americans with sickle cell disease and 3.5 million with sickle cell trait and related disorders.  Sickle cell anemia (SCA) is an inherited and lifelong condition. While there is no generally applicable cure for SCD, several promising developments have occurred to improve the quality of life and survival of SCD patients. The K.I.S. Foundation also provides financial support to research institutions in the quest to find a universal cure for SCD.