This amazing event was designed to stress the need in educating the public about Sickle Cell Disease, stimulating the continued dialogue about how it is spread, its debilitating effects, ways of prevention, the bone marrow transplant surgery, and the need to get tested now. The "Celebrity Bowling Challenge" brings together members of the entertainment industry, businesses, families and Sickle Cell patients.
The Celebrity Bowling Challenge benefits the programs and services of The K.I.S. Foundation, Inc. a501(c)(3)non-profit organization dedicated to "raising awareness" of Sickle Cell Disease, and The Dorothy H. Shepard Scholarship Fund, which provides scholarships to SCD patients in search of a higher education.
The K.I.S. Foundation is a non-profit organization that promotes awareness of Sickle Cell Disease and research to find a cure. Founder Kiki Shephard has been an advocate for Sickle Cell Disease research and prevention for almost two decades. Join the K.I.S. Foundation in the fight to combat Sickle Cell Disease.
H. R. 5124 – “Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2014”
The SCTRA is a bipartisan legislation introduced to the House of Representatives to renew the nation’s programs for research, surveillance, prevention, and treatment of SCD for another 5 years. Bill H.R. 5124 will expand the national newborn screening program, develop a comprehensive adult transition program, continue public surveillance, expand research efforts and establish up to 25 Sickle Cell Treatment Centers throughout the US all in an effort to support the creation of a sustainable comprehensive model of care for individuals affected by SCD.
This is a huge step for maintained, comprehensive care, but this Bill needs your support. We have 30 Days to sign the White House Petition and make a difference in the lives of patients and families living with Sickle Cell Disease. Help us to reach our goal of 100,000 Signatures by October 22, 2014 to secure the introduction of this Bill in the Senate and get H.R. 5124 passed.
SIGN the Electronic Petition Online (takes 10 seconds of your time)
September is National Sickle Cell Disease Awareness Month and the Founder & Executive Director of The K.I.S. Foundation, Inc. is challenging you to join in the fight and give from your heart by donating to The K.I.S. Foundation, Inc.
Visit our Ways to Give section on the website or simply click on the yellow and brown ribbon to make a difference today!
Visit our Events page to purchase your tickets or sponsorship package today!
The Sickle Cell Treatment Reauthorization Act of 2014 introduced in the House of Representatives on July 16, 2014 by Congressman Danny K. Davis (D-IL) and Michael C. Burgess (R-TX). The purpose of this Bill (H.R. 5124) is to amend the Public Health Service Act to reauthorize a Sickle Cell Disease Prevention and Treatment Demonstration Program and to provide for Sickle Cell Disease Research, Surveillance, Prevention, and Treatment.
The priority of the Sickle Cell Treatment Reauthorization, H.R. 5124 is to improve quality of life, treatment, and prevention for those affected by Sickle Cell Disease. Among numerous modified benefits of the Bill includes conducting or supporting research to expand the understanding of the cause of, and to find a cure for, Sickle Cell Disease. It will expand, coordinate, and implement transition services for adolescences with SCD making the transition to adult care. It also aims to establish funding to conduct surveillance and maintain data on the prevalence and distribution of SCD and its associated health outcomes, complications, and treatments; conduct public health initiatives with respect to SCD including education and training for patients, communities, and health care providers; increased efforts to improve access to and receipt of high-quality SCD related healthcare; and to identify and evaluate promising strategies for prevention. The Bill is designed to provide grant funding for up to twenty-five (25) Sickle Cell Treatment Centers throughout the United States for each fiscal year from 2015 through 2020.
The K.I.S. Foundation, Inc. applauds the efforts of Congressman Davis and Congressman Burgess in joining the fight in helping to raising public awareness and calling for change. KiKi Shepard, Founder & Executive Director of The K.I.S. Foundation, Inc. states, “we are happy to educate all our champions of support about the Sickle Cell Treatment Reauthorization Act of 2014. The SCTRA is bipartisan legislation to renew the nation’s programs for research, surveillance, prevention, and treatment of SCD for another five(5) years, is a huge step for maintained, comprehensive care for the Sickle Cell Disease community.”
Representatives Danny K. Davis and Michael C. Burgess development of this Bill was only the first step. It will now need to be introduced to the United States Senate for H.R. 5124 to get passed.
Rocky Carroll hosted a Celebrity Poker Tournament on Saturday, June 7, 2014 to benefit The KIS Foundation Inc, and IX Winds Ranch Foundation Inc. at 10 Deuce. A wonderful time was had by all, especially for those who won which included 1st Place Winner Mr. Guy, 2nd Place Winner Dondre Whitfield, and 3rd Place Winner Ted Lange!
The evening was topped off with a surprise gift from 2nd Place Winner Dondre Whitfield who gave a portion of his winning to both The KIS Foundation Inc, and IX Winds Ranch Foundation Inc.
To see more pictures, please visit our Photo Gallery.
The K.I.S. Foundation attended the SAG-AFTRA Annual Health Fair on Wednesday, May 14, 2014 in Los Angeles, CA. This event was created to inform all industry union members and their dependents about the various medical issues that affect our communities. KiKi Shepard, Founder & Executive Director of The KIS Foundation and Nita Thompson, KISF SCD Community Liaison were on hand to inform and educate attendees about Sickle Cell Disease.
Thanks to all who attended the Health Fair!! We enjoyed speaking with all of our visitors, and appreciate you stopping by The KIS Foundation’s booth to learn about Sickle Cell Disease.
The K.I.S. Foundation participated in a day of helping to save lives hosted by Sabriya’s Castle Fun Foundation’s Blood Drive on Saturday, March 15, 2014 at the Los Angeles Sentinel. KISF Board Member, Dawnn Lewis advocated for the importance of giving blood as was there to show her support. Each month, Children’s Hospital Los Angeles is need of 1,000 units of blood to meet the needs of its patients.
Sabriya’s Castle of Fun Foundation is a 501c3 nonprofit that improves the quality of life for children with cancer, sickle cell disease and other blood disorders and their families in the Los Angeles area. For the last 22 years, Sabriya’s Castle of Fun has partnered with hospitals and other community based organizations to bring hope, joy and strength to 3,000 seriously ill children and their families each year.
Thank you to all who attend the Blood Drive. Your support, blood donations, and registry with the Be The Match® for the National Marrow Donor Program® (NMDP) was greatly appreciated!