H. R. 5124 – “Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2014”
The SCTRA is a bipartisan legislation introduced to the House of Representatives to renew the nation’s programs for research, surveillance, prevention, and treatment of SCD for another 5 years. Bill H.R. 5124 will expand the national newborn screening program, develop a comprehensive adult transition program, continue public surveillance, expand research efforts and establish up to 25 Sickle Cell Treatment Centers throughout the US all in an effort to support the creation of a sustainable comprehensive model of care for individuals affected by SCD.
This is a huge step for maintained, comprehensive care, but this Bill needs your support. We have 30 Days to sign the White House Petition and make a difference in the lives of patients and families living with Sickle Cell Disease. Help us to reach our goal of 100,000 Signatures by October 22, 2014 to secure the introduction of this Bill in the Senate and get H.R. 5124 passed.
SIGN the Electronic Petition Online (takes 10 seconds of your time)