2016 marks the 10 Year Anniversary of The K.I.S. Foundation, Inc., and we’re still working hard to make a difference in the lives of others. Our mission to Raise Awareness of Sickle Cell Disease continues and is stronger than ever.
Through our programs and services, we strive to “improve the social health and quality of life for patients and families diagnosed with Sickle Cell Disease.” The future is bright and promising as advancements are being made everyday.
Thank you for supporting our mission and the SCD community.
A NEW DAY: Concert For A Cause – “The Entertainment Family Gives Back”
Will feature dozens of today’s top performers in the music, film, comedy, dance, and television industries coming together to DONATE THEIR PERFORMANCES in an “All-Out-Jam” to benefit Our Community and non-profit organizations that are giving their all in service to Our Community. Held at the state of the art SABAN Theatre in Beverly Hills, CA on Sunday, December 13, 2015, the spectacular event will also feature multi-GRAMMY Award winner PATRICE RUSHEN as the Music Director of an All-Star band, Broadway star Jeffrey Polk as the events director. Co-Hosted by Multi – BMI, NAACP & GRAMMY Award winning Actress/Singer DAWNN LEWIS & SuperBowl XLV & Dancing with The Stars Champion DONALD DRIVER.
Featuring the Amazing DOUG E. FRESH, ERICA CAMPBELL & EUGE GROOVE with performances by invited artists: MALI MUSIC, CHRIS SPENCER, ANGIE FISHER, KIKI SHEPARD, SINBAD, MELISSA B!, DULE’ HILL, CHRIS HAYZEL, LISA VIDAL, JASON GEORGE, TRACIE THOMS, TONE LOC, SALLI RICHARDSON-WHITFIELD, DONDRE’ T. WHITFIELD, GLYNN TURMAN, ERICA ASH, MARY MCDONNELL, KEARRAN GIOVANNI, PHILLIP P. KEENE, SATORI STONE, MALCOM JAMAL WARNER, JIM PICKENS JR., CHLOE ARNOLD’S SYNCOPATED LADIES, LAMMAN RUCKER, PHIL LAMARR, TYREL JACKSON WILLIAMS, TYLEN JACOB WILLIAMS AND MORE!!
MORNING JEWEL INC. and the LOS ANGELES URBAN LEAGUE are proud to come together to produce this event that will benefit the LAUL, The KIS Foundation For Sickle Cell Disease & EMPOWHER, as part of MJI’s & LAUL’s purpose and mission of providing social services, jobs and other opportunities for individuals from economically disadvantaged communities.
We invite you to join us for this amazing event. Tickets are ON SALE NOW and available at Ticketmaster, Ticketmaster.com, and at the Saban Theater Box Office.
KiKi Shepard, Founder & Executive Director of the K.I.S. Foundation and Dondré T. Whitfield, K.I.S. Foundation Board Member speak about the organizations mission of Raising Awareness of Sickle Cell Disease.
The Celebrity Bowling Challenge stresses the need to educate the public about Sickle Cell Disease, and to stimulate continued dialogue about how it is spread, its debilitating effects, ways of prevention bone marrow transplant surgery, and the need to get tested now!
This fun-filled event will bring together members of the entertainment industry, businesses, families and Sickle Cell patients. We will have 32 teams headed by Celebrity Captains in a two game Bowling Tournament, followed by a Celebrity Challenge Lightning Round. Players will compete for bragging rights, and winners of the tournament will be honored in a light-hearted awards ceremony. Enjoy a fabulous auction, games, surprise entertainment, great food, drink, and event goodies!
For more information on how you can purchase tickets or sponsorship packages, please visit our Events page.
We are proud to announce that we have partnered with The Special Needs Network for their “10th Annual Back 2 School Health & Resource Fair” on Sunday, August 30, 2015 from 2-6 PM. Families with Sickle Cell patients will receive Backpacks with School Supplies and other giveaways. Join us for this fun filled family day!!
Congratulations to K.I.S. Foundation Board Member, André Dawson for being honored by the Los Angeles Chapter of the National Congress of Black Women for his outstanding philanthropic work in the community.
As you know, Sickle Cell Disease (SCD) is a common inherited blood disorder that affects an estimated 90,000 to 100,000 Americans, and can lead to lifelong disabilities and reduced average life expectancy. The disease disproportionately affects people of color, and occurs among roughly one out of every 500 African American births and one out of every 36,000 Hispanic American births.
SCD is a major public health concern that warrants ongoing federal support, and is a priority for President Obama and his Administration.
That’s why the Department of Health and Human Services (HHS) is actively engaged in a number of efforts to help do the following:
HHS is developing Healthy People 2020 objectives to support SCD-related health promotion and disease intervention initiatives across the federal government. To evaluate progress in meeting these objectives and better inform future federally funded research and prevention efforts, the Department is developing a pilot national surveillance system to collect data to better understand characteristics of those affected by SCD, what complications these individuals are experiencing, and what gaps exist in meeting their health needs.
Through the Health Resources and Services Administration’s SCD Treatment and Newborn Screening Programs, HHS is also expanding access to care for individuals with SCD by increasing the number of providers treating patients with SCD who are knowledgeable about current treatment options and identifying those with the disease sooner so that they can begin receiving recommended treatments. HHS is also increasing patient education and outreach efforts for individuals with SCD or who are carriers of the sickle cell gene mutation to prevent infections and ensure needed medical care is received.
The Centers for Disease Control and Prevention (CDC) has additional materials to raise awareness of SCD among teachers, non-medical professionals, and other members of the general public.
The White House is also investing in critical research on SCD at institutions across the country. The National Institutes of Health (NIH) funds research focused on increasing the effective use of known SCD therapies, discovering new treatment options, ameliorating complications, and ultimately finding a cure. In September, NIH released the first systematic and evidence-based report to assist clinicians in delivering care to people living with SCD.
Finally, the CDC has an agency-wide working group to explore opportunities to address unmet needs in SCD research, surveillance, and health education. Through the efforts of this working group and consultation across agencies within HHS, the Department will consider other ways in which it can strengthen its current activities regarding SCD.
We still have much more work to do, but we will continue to make progress — not just to help the tens of thousands of Americans currently living with sickle cell disease, but to ensure that one day, we have a generation where the disease is only something that’s read about in history books.
Thank you for your adding your name to the White House Petition for the Sickle Cell Treatment Reauthorization Act, and for your involvement in the We the People platform.
~We the People, The White House
Raising Awareness of Sickle Cell Disease and registering Bone Marrow Donors with K.I.S. Foundation Board member Dondré T. Whitfield; Bone Marrow Ambassador, Nita Thompson; Luther Craddock & Sherman Kelley of the Prince Hall Masons of the Joseph A. Menkins Lodge No. 103; and KiKi Shepard, Executive Director of the K.I.S. Foundation at the 160th Annual Communication Grand Session, July 13-14,2015.
This was a magnificent and historic event! Special thanks to the Grand Master, the Honorable Lovell Morgan for the invitation to attend, register donors, and for the opportunity to address all of your members about Sickle Cell Disease.