Sickle Cell Disease

FDA Approves Endari® – The First New Sickle Cell Treatment in Almost 20 Years

Posted by on July 8, 2017 at 8:49 am

On July 7, 2017 the U.S. Food and Drug Administration approved Endari® (L-glutamine oral powder) for patients age five years and older with Sickle Cell Disease to reduce severe complications associated with the blood disorder. This represents the first-ever treatment approved for children and the first new treatment for Sickle Cell Disease in almost 20 more »

Delivery Day at the Hospital

Posted by on February 21, 2017 at 11:28 am

The K.I.S. Foundation, Inc., visited with the patients and families at Children’s Hospital Los Angeles for a Special Delivery of the “Crisis Care Package”. This program provides a Response-Aid Kit at not cost to Sickle Cell Disease patients who have been admitted to the hospital because of a Sickle Cell Crisis within the Los Angeles more »

Face the Facts

Posted by on October 19, 2016 at 9:37 am

Did You Know?

Posted by on September 1, 2016 at 12:17 pm
September is National SCD Month - 1

White House’s Response to Petition on Sickle Cell Disease

Posted by on July 28, 2015 at 9:25 am

As you know, Sickle Cell Disease (SCD) is a common inherited blood disorder that affects an estimated 90,000 to 100,000 Americans, and can lead to lifelong disabilities and reduced average life expectancy. The disease disproportionately affects people of color, and occurs among roughly one out of every 500 African American births and one out of more »

Celebrate World Sickle Cell Day

Posted by on June 11, 2015 at 2:08 pm

Call to Action: The White House Petition is Here for the Sickle Cell Treatment Reauthorization Act ! Sign Now!

Posted by on September 27, 2014 at 11:51 am

H. R. 5124 – “Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2014” The SCTRA is a bipartisan legislation introduced to the House of Representatives to renew the nation’s programs for research, surveillance, prevention, and treatment of SCD for another 5 years. Bill H.R. 5124 will expand the national newborn screening program, develop more »

KiKi Shepard issues a Sickle Cell Disease Challenge

Posted by on September 10, 2014 at 9:37 am

September is National Sickle Cell Disease Awareness Month and the Founder & Executive Director of The K.I.S. Foundation, Inc. is challenging you to join in the fight and give from your heart by donating to The K.I.S. Foundation, Inc. Visit our Ways to Give section on the website or simply click on the yellow and more »

Sickle Cell Treatment Reauthorization Act of 2014 introduced in the House of Representatives

Posted by on August 5, 2014 at 12:03 pm
Captial in Washington DC

The Sickle Cell Treatment Reauthorization Act of 2014 introduced in the House of Representatives on July 16, 2014 by Congressman Danny K. Davis (D-IL) and Michael C. Burgess (R-TX). The purpose of this Bill (H.R. 5124) is to amend the Public Health Service Act to reauthorize a Sickle Cell Disease Prevention and Treatment Demonstration Program more »

World Sickle Cell Day is June 19th

Posted by on June 11, 2013 at 9:58 am

World Sickle Cell Day (WSCD) is celebrated on June 19th of each year. It was created by the United Nations by resolution and it is recognized globally. Sickle-cell anaemia is one of the world’s foremost genetic diseases, that it has severe physical, psychological and social consequences for those affected and their families, and that in more »